Marfan Syndrome Support Groups
Virtual Support Groups The Marfan Foundation
Marfan syndrome support groups. Groups meet once a. Marfan Syndrome Canada Support Group has 568 members. Marfan syndrome is an inherited condition that affects the connective tissue of the heart and blood vessels cardiovascular system.
Hi I am a18 Yrs old who has Marfan Syndrome I was told I had this when I was 4 years old. Marfan Syndrome has 13474 members. Connective tissue offers support to many structures including bones tendons.
The Marfan Trust charity. Marfan syndrome is caused by a change in a gene that affects connective tissue. Knowing the signs of these conditions can save lives.
You can get involved in all or some of the events held by your local group. Marfan CONNECT is our online community that allows people impacted by Marfan syndrome and other related disorders to link with others through online groups and forums. Marfans is a rare syndrome that is not well known to say the least.
Many groups focus on social and support events while other groups also hold fundraising and awareness events. We can connect you with local community groups which are located all over the country. Australias only nationwide support group where members have access to EVERYTHING Marfan Syndrome at the touch of a button.
The musculoskeletal system ligaments and muscles and ocular system eyes are also affected. Welcome to the Marfan Syndrome Support Group website. We hope you will find our site helpful.
Local Support Groups. I am a person that has lived with the struggles of Marfan Syndrome all my life.
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This group is for Canadians looking for support and information about their Marfan syndrome diagnosis.
What are Related Conditions. There are many good support groups for people with Marfan syndrome. Please read over group rules before posting. Ad Call For Papers. Marfan Syndrome Canada Support Group has 568 members. Marfan Network Australia Marfan Syndrome has 720 members. Virtual support groups are a great way to connect with others in the Marfan syndrome and related conditions community. What is Marfan Syndrome. This is not a group for medical professionals.
Hi I am a18 Yrs old who has Marfan Syndrome I was told I had this when I was 4 years old. What are Related Conditions. Australias only nationwide support group where members have access to EVERYTHING Marfan Syndrome at the touch of a button. Marfan Syndrome Support Group. Marfans is a rare syndrome that is not well known to say the least. Marfan syndrome may cause leakage of the mitral or aortic valves that control the flow of blood through the heart. I dont let it affect.
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